Online support group

How does it work

What to expect

We have easy to use, weekly group video calls. You just need a microphone and camera on your computer. You will be guided every step of the way by your host. You’ll be part of a friendly session, with guest speakers and chat. Come along, meet new people, get support and learn new things.

Chat in small groups

We know that large groups can be overwhelming at times. The software we use means you’ll be chatting in small groups so you’ll never feel you don’t get a turn to ask your questions or offer support to others.

Live Q&A sessions

There is a live Q&A session attached to every guest speakers presentation, so you’ll always be able to ask the questions you feel are most important to you.

Easy, face-to-face interactions just like in real life

With the easy to use software you’ll be able to see and hear the people you’re chatting to, as long as you have your mic and camera switched on. It’s just like sitting across a table and having a real life interaction.

Support and meet other people

As with all of our support groups, this service is totally free of charge. The aim of the meetings is to support each other, as in real life, it’s a patient led support group, so you tell us what you need and we’ll be there to help you for as long as you need. It’s also a great opportunity to meet other people from across the region who are going through, or have gone through the same procedures as you.

This group is open to patients, family and friends. Anyone who wants to gain knowledge and access support is very welcome.

So grab yourself a drink and join us at one of our meetings.  You might be surprised just how easy it is!

Upcoming talks

12th August
at 6:30pm

Join us on Wednesday 12th August at 18.30 for our online support group call. Catrina Swan Psychosexual Therapist The call […]

27th August
at 6:30pm

Join us on Thursday 27th August at 18.30 for our online support group call. Guest tbc. The call can be […]

9th September
at 6:30pm

Join us on Wednesday 9th September at 18.30 Guest tbc. The call can be accessed via Zoom. To access the […]

View our Resources page to download available presentations from the video calls.

 

Our group video calls are currently only weekly, however this Online Support site allows you to access support round the clock. Check out our Frequently Asked Questions below, or take a looks at our discussion forum, where you can ask questions, and help answer questions that others are asking. Let’s support each other.

Frequently asked questions

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Will I be offered surgery?

Having prostate surgery involves staying in hospital, which could put you at risk of catching coronavirus.  Your doctor will talk to you to make sure you understand your options and help you decide what to do next. Most localised prostate cancer grows slowly. For many men with localised prostate cancer, having hormone therapy for a while first won’t affect how well the surgery works in the long term. If tests show your cancer is more likely to grow quickly, your doctor should make your treatment a priority so that you get the treatment you need without unnecessary delays.

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I think I might have coronavirus – what should I do?

If you’ve been in contact with someone with coronavirus, or if you have a new and continuous cough or a high temperature (fever), stay at home and contact your medical team at the hospital straight away.  If you’re having you should already have the number of someone to call at the hospital if you have any signs of an infection.

If you can’t get hold of your medical team, contact 111 for advice, but make sure you tell them about your prostate cancer diagnosis and any cancer treatments you are having.

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For other men with prostate cancer

Even if you aren’t having one of the treatments listed above, it’s very important to follow the advice from the government and other medical professionals. Avoid contact with other people, including friends and family, to reduce your risk of catching coronavirus.

If the advice for people having cancer treatment changes at any time, health professionals and charities will take steps to make sure patients have the latest information.

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I’m having treatment for prostate cancer – am I at increased risk if I get Coronavirus?

The effects of coronavirus infection could be severe for certain people with prostate cancer. These include if you are having chemotherapy or are part of a clinical trial, using a drug that affects your immune system, such as olaparib (Lynparza®) or pembrolizumab (Keytruda®).

If you’re having one of these treatments, it’s very important to follow the Government’s guidance of shielding.

It’s very likely that your doctor or nurse will limit the amount of time you need to spend at the hospital or GP surgery. For example, you will probably have phone appointments, wherever possible, instead of visiting the hospital or GP surgery. It might also be possible to have blood tests done at home. Speak to your doctor or nurse if you’re concerned about your appointments.

If you’ve had one of the treatments listed above in the last three months, but are no longer having it, you might still be classed as vulnerable. You might get a letter or text from the department of health, or please speak to your hospital doctor about your level of risk from coronavirus. They can help you decide whether or not to follow the latest advice.

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What about my prostate cancer treatment?

The NHS is continuing to provide cancer treatments and has taken steps to make sure the necessary drugs are still available. But some men and their doctors will have to decide whether to delay or change their prostate cancer treatment. This could be for the following reasons.

  • Some prostate cancer treatments increase your risk of getting infections, which could put you at risk of catching coronavirus. In this case, other treatments may be safer for you at this time.
  • Some prostate cancer treatments involve regular hospital appointments or time on a hospital ward, which could put you at risk of catching coronavirus. In this case, other treatments that don’t involve spending time at the hospital may be safer for you until the risk has reduced.

Prostate cancer often grows slowly, so for many men, a delay or change to their treatment shouldn’t affect how well their treatment works in the long term. If tests show your cancer is more likely to grow quickly or spread, your doctor should make your treatment a priority so that you get the treatment you need without unnecessary delays.

If your doctor does need to delay or change your treatment at all, they will talk to you first to make sure you understand your options and why this is happening. Speak to your doctor if you have any concerns.

Your appointments and check-ups may happen over the phone so that you don’t have to go into the hospital or GP surgery. If you’re not sure whether to go to any planned appointments, contact your doctor or nurse to check.

Chat to other men in suffering and help each other

You are not alone, please contact us if you need any advice, help or even for a chat.

We are here for as long as you need us.